Overheard: What Houston corporates are looking for from startups

eavesdropping at the ion

At its annual Activation Festival, the Ion hosted a conversation about the relationship between corporates and startups. Photo courtesy of Shannon O'Hara/the Ion

Hundreds of innovators from Houston and beyond flocked to the Ion's annual Activation Festival, and one of the topics discussed at the series of programming was the relationship between corporates and startups.

One of Houston's points of pride is having the third most Fortune 500 companies headquartered here, but how can the city's innovation ecosystem take advantage of that market? And, on the other side of it, how can corporates make the most of Houston innovators?

At a panel on May 17 entitled "Corporate-Startup Partnerships: How to Build Them, Sustain Them, and How They’re Key to Fast-Tracking Innovation and Growth," three corporate leaders explained how they navigate relationships with startups and how cultivating these opportunities is key to the future of business.

Here are a few of the discussion's highlights.

“Investing in the startup community generally, you’re never going to have a line of sight of where that value is going to come back. You can expect it — I’m not saying it’s altruism, it just comes back in forms that you might not appreciate.”

— Scott Gale, executive director of Halliburton Labs says, explaining that corporate contribution doesn't just have to be financial.

“Ask for advice, don’t ask for money. Show up. Be curious. If you think a corporate is the right potential customer for you, spend the time to try to understand what the people are, who the champions are, what motivates them, and what they need to do to be successful.” 

— Tom Luby, director of TMC Innovation says, noting that it's tried-and-true advice, but still important to remember.

“The person who takes the most risk is the lead adopter — the lead user. That person puts their assets and their name on the line.”

— Nazeer Bhore, global manager, tech scouting, innovation and ventures at ExxonMobil Technology and Engineering, says. “What we bring to the table for startups is all the resources we have — technical resources, assets, use cases, testing facilities, and, of course, funding. Irrespective of what stage you’re in, or how many adjacencies you are, we’re always happy to engage with you," he explains. "The key is for us is to be a lead user.”

“The opportunity for us is to be generalists across a lot of different spaces and then work with our specialists to take a deeper dive. We listen to the market and try to find things our corporate partners or entrepreneurs are interested in and then surround them with the type of things they need to be successful. In many case, talent and expertise are top of that list.”

— Luby says, explaining the nature of the TMC's various programs, from creating startup tech directly and supporting them through their accelerators and even seeding them through the TMC Venture Fund.

“What startups bring is a lot of different ideas — but startups are temporary organizations that’s looking for a scalable and repeatable business model. And we’re not just interested in just the technology, but the business model.”

— Bhore says about what ExxonMobil looks for.

“The flywheel is spinning here in the city of Houston. The next five years are going to be incredibly exciting.”

— Gale says, explaining how much has changed in the past few years in Houston's innovation ecosystem.

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The Ion named three corporate partners ahead of its annual innovation-focused festival. Photo courtesy of the Ion

Houston innovation hub adds Oxy, United, and Woodside as partners

onboarding

Houston’s Ion innovation hub has recruited three heavyweight corporate partners, the hub announced earlier this week.

The new partners are:

  • Houston-based energy company Occidental (known as Oxy).
  • United Airlines Ventures, the sustainability-focused VC arm of Chicago-based United Airlines. United operates a major hub in Houston.
  • Australia-based Woodside Energy, which maintains an office in Houston.

Oxy, United Airlines Ventures, and Woodside will share their expertise in support of Ion’s mission to transform Houston into a global innovation ecosystem, according to an Ion news release. In addition, they will participate in Ion programming and network with Ion affiliates. Executives from all three of the new partners will serve on the Ion Leadership Advisory Roundtable.

“Welcoming our newest partners into Ion’s ecosystem is a further testament to our momentum in the aerospace and energy transition,” says Jan Odegard, who became executive director of the Ion in 2021 after a year of holding the interim position. “Each organization brings their own culture of innovation that aligns with what we are doing at the Ion.”

Michael Leskinen, president of United Airlines Ventures, says the VC firm believes “the Ion will be the epicenter for Houston’s rapidly growing innovation community — a one-stop shop to share ideas, foster startups, and to develop relationships with Houston’s brightest companies and academia.”

Oxy, United Airlines Ventures, and Woodside join Ion corporate partners such as:

  • Aramco Americas
  • Baker Botts
  • BP
  • Chevron
  • ExxonMobil
  • Global Custom Commerce
  • Intel
  • Microsoft
  • Transocean

The Ion announced the new corporate partners in advance of the second annual Ion Activation Festival, set for May 17-19. The Ion and Rice Management Co. host the festival, which shines a spotlight on entrepreneurship and innovation in Houston.

Activities will take place primarily at the Ion’s 16-acre campus. To register for the festival, visit the Ion’s website.

The inaugural festival, held in 2022, drew more than 2,500 attendees.

Paul Cherukuri, vice president of innovation at Rice University, joins the Houston Innovators Podcast. Photo via Rice.edu

This Houston innovator is set on bringing more innovation off campus and into the world

houston innovators podcast episode 180

Rice University was founded on a mission of an "unfettered pursuit of knowledge," says Paul Cherukuri, the inaugural vice president for innovation at Rice University. And that goal is specifically designed to be "for the greater good of society," — especially in Houston.

"Rice is right in the middle of one of the greatest cities in the world," Cherukuri says on this week's episode of the Houston Innovators Podcast. "Houston is special on so many levels that it's ridiculous that no one outside of Houston seems to get that. ... We have a moral responsibility as Rice to do more for this city and the country."

Among the top action items on this overarching mission Rice is on is ensuring that the Rice University's inventions and research that have the potential to make the world a better place are able to commercialize to deliver on that impact.

For decades, university research that made it out into the world did so in two ways: papers and patents. While those two avenues are reliable and on going, they take a while. And, as Cherukuri says, the world needs innovative solutions quicker than ever. Cherukuri is focused on expanding those pathways so that more of this innovation — which he describes as invention and commercialization — to come to fruition.

One of the ways Cherukuri is hoping Rice innovators get "beyond the hedges" of the university, as he describes it, is through the Rice Nexus, a hub within the Ion that Cherukuri announced last month. He says Rice is leasing space in the hub, which is owned and operated by Rice Management Company.

"It's a two-way street," Cherukuri says. "We're going to solve problems out in the real world and get those solutions to scale, and we'll be able to find new problems in the real world and bring them inside of Rice and create that new tech. We want to be able to make solutions."

The idea is to create a bridge between the university and the Ion so that more innovation and research can be shared between the campus and Houston's innovation ecosystem.

"We've got so much technology in our labs that we've never shared with the world," Cherukuri says. "We're going to demonstrate that in the Ion."

Also important to Cherukuri is that other universities have a seat at the table, too.

"The Ion represents this catalyst — it's an aggregator and concentrator of excellence for around the city," Cherukuri says. "We're designing the place so that we can connect to the world better."

Hear more of Cherukuri's thought leadership on Houston, Rice University, and the challenges of advancing research and technology to address society's greatest needs on the podcast. Listen to the interview below — or wherever you stream your podcasts — and subscribe for weekly episodes.


David Cordúa, right, leads The Lymbar. Photo by Dylan McEwan

Houston restaurant royalty reveals details of at new Ion eatery

coming soon

A veteran Houston chef’s new Midtown bar and restaurant is taking shape. When it opens later this fall, The Lymbar will mark chef David Cordúa’s return to Houston's dining scene.

Cordúa's name is well known to Houston diners. The chef worked with his father, legendary Houston restaurateur Michael Cordúa, at Cordúa Restaurants — the hospitality group behind Churrascos, Americas, and Amazon Grill — before the duo parted ways with the company in 2018. They're teaming up again on this new project.

Located inside The Ion, Rice University’s innovation district in the former Sears in Midtown, The Lymbar describes itself as an all-day neighborhood craft cocktail bar and restaurant. Named for the street in Meyerland where Cordúa grew up, the restaurant will serve an eclectic menu of Latin and Mediterranean-inspired dishes in a space designed by local firm Gin Design Group (Eunice, Daily Gather).

“The Ion already has an exciting buzz of ‘greenergy’ with great minds, start-ups and entrepreneurs coming together. The Lymbar will be their living room,” Cordúa said in a statement. “The vibe is ‘Golden Girls Chic’ with inspiration from childhood nostalgia like ‘Where the Wild Things Are’ and Shel Silverstein.”

Cordúa provided CultureMap with a preview of some of the menu items he plans to serve at The Lymbar. Those looking for a bar snack may order the 'Rosespud', oversized potato and plantain chips served with dips such as onion dip, chimichurri, and red curry romesco or items such as foie gras doughnut holes, Monte Cristo empanadas with raspberry dill vinaigrette, and sweet corn flan with Cracker Jacks. The truffle twinkie that won him the top prize at the first Truffle Masters competition will also be available.

Meals will begin with seasonal small plates such as fresh corn gnocchi with smoked tomato sauce, labneh and basil as well as rotating flatbreads like caramelized onions with new potatoes. Entree options include a stuffed chicken ballotine with sherry cream sauce and morels that draws upon the chef’s French training or go South American with a dish like arroz tumbado with oven-roasted branzino.

Expect to see The Lymbar’s build-your-own-taco boards on Instagram. They’ll combine proteins such as chicken shawarma, achiote pork belly, and sesame-seasoned tri-tip with basmati rice and house sourdough pita.

The chef has recruited an experienced group to help him open the restaurant. They include: executive chef Adolfo Lopez, Jr. (Brenner’s on the Bayou, Churrascos); general manager Jaime Rangel (Cordúa Restaurants); manager Travis Wingate (Churrascos, La Griglia); and bar manager Sean Stapleton (The Refuge in the Woodlands).

“We’re the lobby bar of The Ion,” Cordúa added. “We’ll be a place that celebrates the creativity and innovative spirit that makes Houston one of the best cities in the world.”

Already home to a location of Common Bond On-The-Go and Second Draught, a craft beer bar, The Ion will also soon welcome Late August, a Afro-Asian restaurant from Houston chef and Top Chef finalist Dawn Burrell.

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This article originally ran on CultureMap.

The Ion has announced its latest corporate partner — and more Houston innovation news. Photo courtesy of the Ion

Ion names latest partner, Houston startup raises more funding, and more local innovation news

short stories

As Houston ramps up for fall, the city's innovation news has followed suit, and there might be some headlines you may have missed.

In this roundup of short stories within Houston startups and tech, Houston investors announce new deals in sports and energy tech, veterans can apply for new grant program, and more.

The Ion announces latest partner

The Ion has named its latest partner. Image courtesy of the Ion

The Ion Houston announced that Switzerland Transocean has joined on as an affiliate partner. The oil and gas company joins other corporate partners — including Chevron, Baker Botts, Microsoft, and more — in providing programming and resources for the Ion community and taking a seat at the Ion’s Roundtable.

Transocean's Houston office is in the Energy Corridor.

Houston-based Codenotary has expanded its series B fundraising round

Codenotary's software enables tools for notarization and verification of the software development life cycle. Photo via Getty Images

A Houston software startup that raised $12.5 million earlier this year has announced additional funding of $6 million. Codenotary, whose technology helps secure software supply chains, closed its series B round in January. The fresh funding brings the company's total investment raised to $24 million — thanks to investors Bluwat and Elaia.leaders and following a series A round that was announced in 2020.

Codenotary, formerly known as vChain, was founded in 2018 by CEO Moshe Bar and CTO Dennis Zimmer. The additional capital, which will go towards scaling up sales in the U.S. and Europe as well as entering the Asian market, was raised as an extension of the series B round.

“Software supply chains are under constant attack and so every enterprise is looking for effective ways to protect their valuable software assets,” says Bar in a news release. “The additional capital will help us expand faster – increasing our ability to roll out additional features and build out our worldwide sales efforts that includes our partner network. Not every startup company is able to do that right now but we’re fortunate to have good growth and the right investors behind us.”

Houston-based energy investor announces latest portfolio company

Here's Energy Transition Ventures' latest investment. Image via Getty Images

Energy Transition Ventures, a Houston-based investment firm, has announced its latest investment. ETV led Rutgers University-spinout RenewCO2's $2 million seed round.The startup has created a "novel catalyst technology to convert carbon from hard-to-abate sectors and transform it into a feedstock for carbon-negative, plastic monomers at a fraction of the cost of plastics derived from fossil sources," per a news release.

Including this latest seed round, the New Jersey-based cleantech company has raised $10 million in grants and investment. RenewCO2 hops to start supplying its eCUT electrolysis systems to customers by 2025.

"Converting CO2 directly into negative carbon products is a game changer for the climate. With low-cost renewable power, combined falling costs and advancements in electrolysis, the RenewCO2 has the opportunity to be world-changing," says Neal Dikeman, co-founder and partner of Energy Transition Ventures. "They are completely rewriting how we make plastic and chemical products and how these industries will handle carbon emissions, regardless of the price of carbon or credits. We are excited about power to chemicals and working to use renewable energy to make CO2 the low-cost chemicals feedstock of the future, not the present pollutant."

Grants open for veterans

Veteran-owned businesses can apply for this grant. ​Photo via Getty Images​

National nonprofit Founders First CDC, which exists to empower expansion in diverse founder-led, revenue-generating businesses, has announced that applications are open online for qualified individuals to apply to its 2022 Stephen L. Tadlock Fund – a grant program to support U.S. veteran small business owners. Twenty-five veterans will receive a $1,000 grant.

To be eligible, the company’s founder must be a U.S. military veteran, have an active U.S.-based business, and employ between 2 and 50 employees, per a news release. Applications are open through October 18, and recipients will be announced on Veterans Day, November 11, 2022.

“Given the current state of our economy, small business owners are feeling the brunt of the rising cost of living, inflation and the challenges to provide goods and services for their customers,” says Shaylon Scott, executive director of Founders First, in the news release. “As our founder, Kim Folsom has strong ties to the military through her brother’s service in the U.S. Navy, this particular grant is incredibly special to Founders First, as we’re able to help veteran business owners by investing in their businesses during uncertain economic times. Grants such as these, no matter how large or small of an investment, are a vital and impactful way to help sustain businesses and provide growth opportunities, and we are incredibly proud to support veterans throughout the country during this critical time.”

The judging committee for the Stephen L. Tadlock Grant includes a panel of distinguished veterans, representing multiple branches of service.

Local investment group focuses next fund on sports tech

UCN is focused on sports tech. Image via UCN

The Urban Capital Network — a Houston-based organization focused on democratizing startup investment — has focused its most recent fund on sports tech. The fund, which will raise $500,000 to $1 million, will focus on sports tech businesses, including the first two investments in National Cycling League and Screen Skinz. The National Cycling League is innovating cycling with real and virtual interaction. Screen Skinz has created a new kind of screen protector and has been licensed by several sports entities. UCN investors can be a part of the fund for as little as $5,000.

The new Dream Lab from Teach For America Houston will take 25 ninth graders to the Ion for a mini-innovation accelerator. Image courtesy of TFA

National nonprofit launches Houston innovation lab for kids

dreaming up innovation

Teach For America's Houston chapter has announced a new initiative for children to check out educational opportunities within innovation.

TFA Houston's Network Learning and Innovation Hub is opening a new space, called The Dream Lab. The lab is a set of immersive spaces where students leverage their imagination and creativity to innovate and solve problems affecting their communities.

“The Dream Lab is one of the novel ways we’re re-imagining the ways we meet the needs of Houston’s most vulnerable students and communities,” says Sarah Essama, founder of The Dream Lab and director of social innovation at Teach For America Houston, in a news release. “It introduces a non-traditional approach to learning so that students are better equipped to handle the complexities of an ever-changing world.”

This Friday, the new concept is rolling out to high school students in partnership with DivInc Houston, a nonprofit focused on social and economic equity in entrepreneurship, and 25 ninth graders will get to spend the day at the Ion for a mini-innovation accelerator. The students will be tasked to creatively solve problems in their own communities.

“If there is anything we have learned over the last two and a half years, it’s the need to be innovative, and it’s a skill we must teach our younger generations so they can be adequately prepared for the future,” says Tiffany Cuellar Needham, executive director of Teach For America Houston, in the release. “We look forward to growing The Dream Lab initiative as we continue exploring ways to re-invent and re-imagine what schools can look like for students.”

TFA, which has operated out of Houston for over 30 years, has hosted two other Dream Labs for fourth graders in Houston. Those students were tasked with using technology to design their innovative dream space, and TFA Houston receved positive feedback from participants.

The Dream Lab is right in line with Teach For America Houston’s quest to create educational equity for all students regardless of their socioeconomic and cultural backgrounds.

“All students should have access to education that prepares them to become leaders and change-makers of tomorrow. While we have made great progress on this front, we know we have a lot more work ahead of us. Programs like Dream Lab will help us realize our mission of ensuring that one day all children in our country will have the opportunity to attain an excellent education,” says Essama.

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Fast-growing Houston-based geothermal energy co. secures $255M in additional funding

show me the money

A Houston company that's responding to rising energy demand by harnessing geothermal energy through its technology has again secured millions in funding. The deal brings Fervo's total funding secured this year to around $600 million.

Fervo Energy announced that it has raised $255 million in new funding and capital availability. The $135 million corporate equity round was led by Capricorn’s Technology Impact Fund II with participating investors including Breakthrough Energy Ventures, CalSTRS, Congruent Ventures, CPP Investments, DCVC, Devon Energy, Galvanize Climate Solutions, Liberty Mutual Investments, Mercuria, and Sabanci Climate Ventures.

The funding will go toward supporting Fervo's ongoing and future geothermal projects.

“The demand for 24/7 carbon-free energy is at an all-time high, and Fervo is one of the only companies building large projects that will come online before the end of the decade,” Fervo CEO and Co-Founder Tim Latimer says in a news release. “Investors recognize that Fervo’s ability to get to scale quickly is vital in an evolving market that is seeing unprecedented energy demand from AI and other sources.”

Additionally, Fervo secured a $120 million letter of credit and term loan facility from Mercuria, an independent energy and commodity group that previously invested in the company.

“In surveying power markets across the U.S. today, the need for next-generation geothermal is undeniable,” Brian Falik, group chief investment officer of Mercuria, adds. “We believe in Fervo not just because their EGS approach is cost-effective, commercially viable, and already being deployed at scale, but because they set ambitious targets and consistently deliver.”

In February, Fervo secured $244 million in a financing round led by Devon Energy, and in September, the company received a $100 million bridge loan for the first phase of its ongoing project in Utah. This project, known as Project Cape, represents a 100x growth opportunity for Fervo, as Latimer explained to InnovationMap earlier this year. As of now, Project Cape is fully permitted up to 2 GW and will begin generating electricity in 2026, per the company.

Other wins for Fervo this year include moving into its new headquarters in downtown Houston, securing a power purchase agreement with California, growing its partnership with Google, and being named amongst the year's top inventions by Time magazine.


Investors from Houston, Boston fuel Greentown with $4M commitment

seeing green

Greentown Labs, a climatetech incubator with locations in the Houston and Boston areas, has announced it has received funding from a mix of investors.

The $4 million in funding came from both of the Houston and Massachusetts locations. Houston investors included Bobby Tudor, CEO of Artemis Energy Partners and chairman of the Houston Energy Transition Initiative; David Baldwin, co-founder of OpenMinds and TEX-E and partner at SCF Partners; and Rice University. Other investors included MassDevelopment and the City of Somerville.

“The challenges of the energy transition are immense, and the role played by technology incubators like Greentown Labs is essential,” Tudor says in a news release. “We believe this role, which is a partnership between academia, industry, philanthropists, entrepreneurs, and governments, is the best way to get to effective, scalable solutions in a time frame that the urgency of the challenge requires. We need all hands on deck, and this partnership between Massachusetts and Texas can be a role model for others.”

According to Greentown, the funding will support its financial position and contribute to preparing the incubator for its next chapter of supporting its its leadership team prepare for Greentown’s next chapter supporting and growing its 575 startups.

“Greentown’s mission aligns closely with the Houston Energy Transition Initiative’s goal of accelerating global solutions to address the dual challenge of meeting growing energy demand globally while also significantly reducing CO2 emissions,” adds Steve Kean, president and CEO of the Greater Houston Partnership.

With the announcement of the funding, Greentown named its board members, including Tudor, who will serve as Greentown Labs Board Chair. The other Houston-based board members are:

  • David Baldwin, co-founder of OpenMinds and TEX-E; partner atSCF Partners
  • Bob Harvey, former president and CEO of GHP; board member of TEX-E
  • Jane Stricker, senior vice president of energy transition and executive director of HETI

“With this new funding, Greentown is poised to expand its impact across its existing ecosystems and support even more climatetech startups,” adds Kevin Dutt, interim CEO of Greentown Labs. “We believe in the essential role entrepreneurship will play in the energy transition and we’re grateful for the support of our partners who share in that belief and our collective commitment to commercializing these technologies as quickly and efficiently as possible.”

According to Greentown, the incubator plans to announce its new CEO in the coming months.

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This article originally ran on EnergyCapital.

From hiring tips to AI's impact on the workforce, here's what guest columns were the most read in 2024

year in review

Editor's note: Every week, InnovationMap runs one or two guest columns written by tech entrepreneurs, public relations experts, data geniuses, and more. As Houston's innovation ecosystem gets ready for 2025, here are some of this year's top guest contributor pieces — each with pertinent information and advice for startups both at publishing and into the new year. Make sure to click through to continue reading each piece.

Is your New Year's resolution to start contributing? Email natalie@innovationmap.com to learn more.

How to avoid bad hiring decisions when it matters most, according to this Houston expert

Despite the inevitability of bad hires, recruiters equipped with proper tools and training can identify red flags and take preventive measures. Photo by Tima Miroshnichenko from Pexels

Written by Karen Leal, performance specialist with Houston-based Insperity, a provider of human resources offering a suite of scalable HR solutions available in the marketplace.

Hiring the right people for the right roles is ideal and can make an organization reach new heights. The reality is every business has made a bad hire.

Finding the wrong fit for a team or organization is not uncommon, but it is important to know what it costs the organization, which can be detrimental to company finances and its workplace culture, especially small businesses and startups where the impact is magnified.

The U.S. Department of Labor reports a bad hire can cost up to 30 percent of the employee’s wage, which would be approximately $18,000 since the average American wage is $60,000. In addition, there are soft costs of managers and leadership time during the hiring and training process, which adds up quickly. Continue reading.

How AI is changing product management and what you need to know

A product management expert shares how artificial intelligence is affecting the process for the tech and startup worlds. Photo via Getty Images

Written by Natasha Gorodetsky, founder and CEO of Product Pursuits, a Houston company that helps early stage and venture-backed startups build products and create impact.

For the past 14 months, everyone has been talking about ways artificial intelligence is changing the world, and product management is not an exception. The challenge, as with every new technology, is not only adopting it but understanding what old habits, workflows, and processes are affected by it.

Product managers — as well as startup founders leading a product function — more than any other role, face a challenge of bringing new life-changing products to market that may or may not be received well by their users. A product manager’s goal is complex — bring value, stay ahead of the competition, be innovative. Yet, the "behind the scenes" grind requires endless decision making and trade offs to inspire stakeholders to move forward and deliver.

As we dive into 2024, it is obvious that AI tools do not only transform the way we work but also help product managers create products that exceed customer expectation and drive businesses forward. Continue reading.

Houston expert shares 3 ways to stay on top of employee mental health

Companies that intentionally focus on their employees’ mental well-being will reap the benefits of a happier, healthier workforce. Photo via Getty Images

Written by Dennis Yung, executive vice president and general manager at Skanska.

Conversations surrounding mental health have come to the forefront of business and is an imperative aspect that cannot be ignored by business leaders.

Approximately 20 percent of Americans, which is 50 million people (about twice the population of Texas), are experiencing a mental illness, 15 percent of Americans had a substance use disorder in the past year and nearly 5 percent, over 12.1 million adults, reported serious thoughts of suicide (Mental Health America). Notably, certain professions, such as construction, exhibit higher suicide rates, (CDC). With these staggering numbers, the foundation of workplace safety extends beyond physical well-being to encompass psychological health.

The landscape has undergone a transformation, stemming from the pandemic, and the stigma of mental health concerns and seeking help has loosened. Recognizing that September is Suicide Prevention Month, below are three ways businesses of every size can actively support the mental well-being of their employees. Continue reading.

Houston expert shares 3 business trend predictions for 2024

Here are predictions for what current and emerging trends will further shape businesses in 2024. Photo via Getty Images

Written by Bryce Lindner, senior vice president and market executive, commercial banking in South Texas at Louisiana at Bank of America.

Last year was a dynamic year for businesses across all sectors. Artificial intelligence went from a novel technology to a more widely utilized business productivity tool. Many companies invested additional resources in sustainable business practices. And digital business solutions helped companies thrive.

Here are predictions for what current and emerging trends will further shape businesses in 2024. Continue reading.

How this Houston innovator is using his personal connection to ALS fuel his fight for a cure

Daniel Barvin has a neurodegenerative disease in his near future. He joined Houston-based Coya Therapeutics to help fight for a cure to the aggressively deadly ALS. Photo via Getty Images

Written by Daniel Barvin, vice president of operations and patient advocacy at Coya Therapeutics.

We can never predict how our lives will turn out, but then maybe some of us can. Genetic testing showed that I, like my grandfather, aunt, uncle and father before me, would most likely die of amyotrophic lateral sclerosis, more commonly known as ALS, and/or frontotemporal degeneration (FTD) in my 40s.

Being 36, it’s possible that fear could have overtaken my life, but instead I chose to fight for every chance to change not only my life, but the lives of millions who are suffering or may one day suffer from neurodegenerative disease.

ALS is a rare disease that robs one of their ability to control their muscles, leading them to lose their ability to walk, talk and eventually breathe. Eighty percent of cases are sporadic (of unknown origin) and 20 percent have known genetic causes. Continue reading.

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